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Posts tagged ‘Twitter’

“There is no shame in not knowing; the shame lies in not finding out.”

This article is to help us as human beings learn a little bit about something we may not already know and educate people as we go. I hope you follow this journey into the world of Fibromyalgia and learn some more I did. Fibromyalgia also known as Fibro is a medical disorder were people suffer from chronic pain. Its cause however is unknown and there is no cure.

Granted before researching and writing this article I did not know about Fibro and how the people who had it suffered. I was like many of you reading this article and how I discovered what it was, was unconventional it was through my friend Audrey who I met on Twitter. I decided that the best way to learn about Fibro was through research and learning what it was like to suffer from the disease through an interview.

Yes and Audrey was definitely the best person to help us learn a little bit more about Fibro and how it affected people’s lives, I hope you enjoy our interview and perhaps learn a little something

 

 

 

 How long have you suffered from fibro?

 

I have been suffering from fibro Since February 11th 2010, the time has passed quickly but not without its difficulties everyday has been a challenge.

 

What are your symptoms?

 

I have many symptoms which can range in pain levels and location, although I am always in pain the pain moves. The main places I suffer with pains in the head, eyes, neck, shoulders, arms, fingers, stomach, back. The condition is difficult as you cannot predict were the pains are going to be next. Fibro can be frustrating as one moment you can be happy and laughing and the next moment excruciating pain that can ruin happy moments which others can take for granted.

 

One of my symptoms is chronic fatigue which can lower my physical and intellectual performances which leaves it difficult for me to focus due to the level of pain I am in. As a result I can sometimes lose patience which can be frustrating. Suffering from Fibro caused me to be depressed for several months after my diagnosis the depression increased my anxiety.

 

 I can sometimes struggle to breath during the night. As well as this I don’t breathe enough because of the pains which affects the muscles of my bronchial tube.

Also my body struggles to tolerate foods and drinks that it once had no problem with previously this can surprise me as it can be hugely unexpected.

 

 

Other symptoms include, chest pains, trembling, pins and needles and loss of strength

As a result of my Fibro pains my humour can change depending on the level of pain which can cause frustrations as mood changes can be unpredictable.

 

Do the changes in weather affect you health?

 

I suffer from Reynaud syndrome in cold climates as my blood does not circulate well which leaves the fingers and feet white and paralyzed. This restricts my movement further as well as this I have trouble with coordination specifically with hand gestures.

 I also have restricted movement for example moving up and down stairs which the weather also affects due to cold climates making joints stiffer.

 

I also have hyper sensibility from noises, light, as well as temperature changes which the weather can also contribute too.

 

How does it affect your day?

 

As a Fibro sufferer you never know how your day will be, even the next minute is unpredictable. I never have two days which are the same which can make things difficult to plan. Planning things such as holidays and day trips can be difficult because the pain is very unpredictable.

 Fibro has made me clumsier and I often feel faint or nauseous from the pain I am in. Also unfortunately something as simple as being hugged can leave a bruise.

 

It has also affected my confidence and self esteem as it is like you are not the person you were before, and you don’t know yourself. This makes life difficult as you have to learn to be you again but from this I have learnt a lot about me I can adapt and it has shown how much strength as a person I have to survive and I know what and who are important to me .

 

Does Fibro affect your ability to work?

 

Yes it has affected me greatly because I have had to stop my job because of it. My job was working as a Specialized Veterinary Assistant in which I worked for three years however Fibro made this two physically demanding which makes me very upset and is very frustrating as animals are my passion.

 

Are there any jobs you could do?

 

They are jobs I can do but not without difficulties finding companies to accommodate the illness is difficult as you can know in advance that you are going to need extra support with your work or possibly a day off that you had not planned.

Also knowing you are going to be able to do a job is very difficult and not something you can predict so finding work is extremely difficult.

 

An option that some sufferers can take is for them to work at home. Although this can be difficult as it depends not only the skills you have but there is the issue that we are not all the same, so maybe on fibromyalgia can do a job another can not necessarily do this same job. I have a friend who also suffers from Fibro she is a nurse but she had to stop due to the severity of pain she was in.

 

 Does stress trigger your symptoms? 

 

Stress can be a factor in my pains several months ago I was very worried for someone who was in a very bad period of their life. I was there each day for this person trying to support them as best as I could. This took a lot of energy physically and emotionally although I do not regret supporting this person my pains were severely increased due to the stressful period.  
 
 Has anything changed in your life since suffering from the disease?

Everything in my life has changed the relationship with my partner even if he is very helpful and he understands the disease very well. Every day is not easy for me and him.

 

 I like to say that since I have Fibro, I think it would be better to me to live alone as the disease does not just not affect you but those around you.

I hate to complain, I don’t always say when I have big pains because I don’t want to annoy anyone with it, also complaining does not help the spirit. BUT, sometimes you need to complain to release the tension. Sometimes you need to be quiet and be alone you just need these moments without having to explain this.


What would you say to people who are suffering with fibro?

 

To those suffering with Fibro be brave! This is hell yes but we have to keep fighting for those who have suffered and committed suicide due to the unbearable pain.

 

We must fight to raise awareness to a society which is not aware of the disease until Fibro gets the recognition it should.

 

I have been lucky enough to have found awesome people who make me smile and bring happiness and this helps me a lot and every day. When you are happy and live great moments you can live with your pains better.  Keep the fight, keep smiling even if it’s not easy each we have to fight together to give this disease recognition.

Don’t lose hope, never.

 What would you like to say to those who don’t know about fibro?
 

 I think when a person does not live with a disorder like Fibro, they can’t really understand what it is and even people who live with you can’t imagine it.

Also it can be difficult as people do not very understand when you complain and you can annoy people. It is also difficult for them to understand that you can be happy but this does not mean you are not constantly  suffering now and consequently do not trust you as for a moment you are happy and you are coping with the pain they think it is fake and that you are exaggerating the pain you are in.

I am constantly in pain and I am trying to live my life please do not judge me and recognise I am a person just like you and I am trying to survive as best as I can and I thank you for understanding this.

 

Is there any advice you would like to give to people coping with fibro?

 

For those suffering from Fibro try things to see what can help you even for a little while such as acupuncture, yoga, meditation, swimming or see a psychologist to help you cope with your pain.  It’s hard to move, but we need as its worse for the body not too. Try to find a new passion if you can’t continue the one you did before, new occupations, new reasons to live and continue to advance and be who you are.

Fibro has made me adapt my life I may be in pain but I am doing my best to life the best life possible you can too.

 

 

 

Thank you Audrey for participating in this interview and sharing part of your life as a Fibro suffer.

Hopefully this will help Fibro sufferers and people understand the disorder it has certainly educated me.

 

 

Fibromyalgia Day 2012 is May the 12th join us in support by wearing purple or a purple ribbon in support.

 

 

 

 

 

 

 

 

This article is personal opinions of Fibromyalgia for more information please seek medical advice.

 

 

 

 

 

 

Our Lost Girl includes Trick and Hale

This show is a whole,

Elements missing,

Would rip it apart,

For Trick and Hale,

are a strength,

That makes Lost Girl prevail,

Characters that bring humour,

Empowerment,

Something more to be seen,

How many scenes unfinished,

Would there be,

Lost Girl would definitely be lost.

This article is based on the original that can be found here http://faenatics.com/forum/viewtopic.php?f=1&t=15

As many of you know on the opening credits of Lost Girl K.C Collins (Hale) and Rick Howland (trick) are only noted as recurring characters and therefore can be cut from the show at any time. Many of you are already trying to change this in which I offer full support.

Please spare a tweet or two for the following My #LostGirl includes Trick & Hale! @lostgirlseries @showcasedotca

Let’s see if we can get this world wide trending and spread it to all other fans.

Thank you for your support.

Also in support of this we all could change our pics to trick or hale or a combination of both.

Top 3 of 3

Over the last three months I have achieved much more than I had imagined, thank you to everyone who has viewed my blog over the last three months and has helped me reach over 2,000 views.

As Thursday will be the three month anniversary of my blog; I have decided to celebrate this by posting my top three poems of the last three months.

  1. Beauty on the screen
  2. Call yourself a friend
  3. Perfectly beautiful

Beauty on the screen

Is that beauty on the screen?

Reality,

Or a defamation,

A view of what they want you to see,

A disguise,

A fiction,

Of something,

Dangerous ugly and humane,

Enforced beliefs,

Sucked into a dream,

A beauty to behold,

Nothing but a fake.

Call yourself a friend

Why don’t you ask what I’m feeling?

Why I’m so glum,

Maybe I need help,

Maybe some fun,

Why don’t you ask what I’m feeling?

Maybe you could help,

Maybe you need some fun,

Why don’t you ask what I’m feeling?

What’s eating me,

What’s scaring you?

Why don’t you ask what I’m feeling?

Perfectly beautiful

The beauty that beholds me,

So real and true,

Could anybody be as beautiful as you?

Don’t ever doubt it,

Hear me, please listen!

Don’t doubt yourself,

Please,

Believe me it’s true,

You don’t believe it,

You don’t see it,

It’s what makes you perfect.

My personal favourite so far is ‘Perfectly beautiful’, everyone is beautiful and it’s the acceptance of how YOU perceive yourself that counts and not anyone else.

Special Thank You!

 

This blog is a special thank you to you!

My wonderful readers of my blog, I have reached over 500 views in 35 days. I have achieved much more than expected, this I am extremely grateful for this thank you.

I never expected to reach this amount of views in 6 months not in  just under 6 weeks, I hope for many more views.

Blogging is allowing me to share my views, thoughts and most importantly part of me with you. In a sense it is a form of therapeutic release for me in which I am able to reveal to you.

If you have any views on what you would like improving or what you would like to see on my blog please let me know.

Thank you for the support and I hope this continues.

Keep watching for new blogs, thank you!

Also if you want to know more about me how about following me on twitter: writeitfeelit  or join my facebook page: http://www.facebook.com/#!/pages/Write-It-Feel-It/198640983527525

 

Feel Free to post your own blog links on these sites, I love reading new things.

 

 

Keep writing!

Kirsty x

Twitter to simple or a marketers dream

Twitter a business built on a set of status limited to a 140 characters. Some would argue that twitter was a concept far too simple for any real use.

Although Twitter is rivalling Facebook gaining new people every day, twitter is soon turning into a marketers dream. Although some question twitter and its worth, but this could only be questioned by those who doubt their brand.

Those with poor branding and those who have an inability to target their market within the 140 characters are at a disadvantage. Twitter is reaching more people around the world quicker with a button to for people to re-tweet things that they enjoy and feel are useful to them. This can be both positive and negative for an organisation as they can become powerful through the power of this media device overnight. Just as it can bring u success the power of this tool can have the opposite effect on an organisation, it can change it.

Branding is an important tool for an organisation’s the difference between making something memorable and successful and making something memorable and having drastic consequences for an organisation. it also can be used as an indication as to how successful or unsuccessful something similar to a free surveying tool where participants would not even know they were being surveyed , as it is subtle in its job.

This asks the question should organisations train their employees in twitter and how to promote their brand in 140 character. As well as being trained on how it can utilised and have a positive or negative effect on them as a result of the way it is used. The answer is probably yes a good face in the public eye can never harm a brand and Twitter is proving it is making organisations successful. Bad tweeting had bad consequences; employees may also need a code of conduct in relation to social networking but without stopping its employees from using it.

Twitter itself is a powerful brand itself used in the right way can have a huge effect on promoting a business. It is simple but with a maximum affect.

Keep tweeting, keep growing with maximum impact.

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